Despite his passion for education, admirable work ethic and
obvious intelligence, 19 year old Bernard faced a future in which he
would be judged by his appearance. He would not be merited on his
hard-earned qualifications nor his determination to succeed, but would
be placed in a box of limitation due to the neurofibroma that had
overwhelmed his face for over a decade.
When Bernard was four years old his parents first noticed a growth on
his face, but were unable to get him the treatment that he needed. Hope
was ignited when he was 11 and local surgeons agreed to operate. But
that same flicker of hope was soon extinguished after doctors declared
the condition too complex and cancelled the surgery. Bernard and his
family were told they would need to pay $60,000 for a specialist and the
reality of the tumor never being removed began to sink in: “That day I
felt hopeless” said Bernard, his head hung. “I had told all of my
friends that I was getting surgery and I had to go back defeated”.
Bernard used his disappointment to drive his efforts into school,
promising to not let it affect his life. But deep down, he still waited
for a phone call to say that something would and could be done. Over the
years Bernard gained excellent merits at school and was striving
towards a better future for himself. His father encouraged him to dream
and always made sure to ask him what he wanted to become, motivating him
to work hard to reach his goals.
The young dreamer soon became a top student in his class and a star
achiever: “You cannot let what people say about you stop you from doing
what you want to do. All my life I wanted to be something big and no
matter what people said about me, I would not let it stop me.”
But all the qualifications and positivity in the world could not stop
other people limiting Bernard’s ability because of his appearance: “I
did not feel limited inside but I knew that my condition would restrict
me externally as people would judge me.” As Bernard looked towards a
college education and potential work, he knew that his tumor would play a
factor in his future. “It’s great that it didn’t affect his personality
or self-esteem but eventually these types of conditions can lead to
further problems and it would be hard for him to get a job where he
wasn’t judged” said Ward Team Leader Deb Louden (AUS), who cared for
Bernard while onboard the Africa Mercy.
His school teachers knew this was a possibility and were concerned
for their student. After pointing him in the direction of Mercy Ships,
Bernard was given the opportunity to have surgery: “When they told me it
was possible, I had a feeling of euphoria I can’t even explain!”
exclaimed Bernard. But in the back of his mind was the knowledge that
the removal of his genetically caused neurofibroma was no standard
procedure.
Ten hours of surgery, and over 4.5 liters of blood loss later,
Bernard awoke free from the weight that threatened to hold him back.
Despite still feeling dizzy, disorientated and filled with drainage
tubes, Bernard immediately began asking when he could return to school.
At the first available opportunity he took out his study books and spoke
to fellow classmates on the phone to catch up on lesson notes while
down in the wards. Nothing was stopping this determined young man from
taking the exams the following month that would determine his future.
Following previous disappointments and surgery cancellations, Bernard
had only told a small handful of people at his school where he had
been.
So when he walked into his exam hall filled with hundreds of his
friends and schoolmates, there was an eruption of joy: “We cannot
believe it!” cried one friend, “what a difference this will make to his
life!”
Teachers and pupils began to dance and cheer as Bernard made his way
to the front of the room to triumphantly greet his peers: “Before the
surgery…” he began, “people would keep their distance. But now people
approach me. It’s given me more confidence and self-esteem and I now
have more opportunities than I had before! Thank you Mercy Ships!”
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