Sunday, April 17, 2016

Lucael

This post is reblogged from "Through My Porthole" and it's lovely . . . 

Yesterday Lucael was utterly miserable. Maybe my few minutes of baby-rocking and off-key singing comforted him a little after his surgery; I know my prayers touched his spirit. But this wee mite was very unhappy that he could no longer suck on his fingers through his bilateral clefts, and his mouth just hurt. His stoic GreatGrandMother was in tears over his discomfort, and overwhelmed that her wee man’s congenital deformity is gone forever. Their story is mind-bending.

©2016 Mercy Ships - Photo Credit Catrice Wulf - Lucael (MGC09433) during one of his pre-op appointments.
Lucael a month into the Infant Feeding Programme. Pic by Catrice Wulf

It was a shock to Lucael’s 14 year-old mother when her baby boy was born with such a frightening looking mouth. But Lucael’s appearance was only the tip of the iceberg; the large cleft in the roof of his mouth was a threat to his very life as it prevented him from successfully breastfeeding. She had given birth in a hospital and the doctor assured the young teenager the baby’s condition could be fixed. The devastating news was they would have to go elsewhere and pay a huge amount of money for the operations.  The impossibility of the situation was crushing.

While the people in Lucael’s village had heard about babies being born like this, but no one had ever witnessed it. Their suspicion grew into unkindness towards the struggling family.

Lucael’s young mother simply couldn’t cope, so GrandMother stepped in to care for the tiny infant. Lucael’s Mum worked to help pay for milk for the baby. With baby formula costing at least 4 days wages for the average Malagasy, this impoverished family did what most resort to. They spent almost 1 day’s pay on a can on sweetened condensed milk, and diluted it to feed the newborn over the week ahead. The substitute didn’t nourish his tiny body. Lucael simply failed to thrive.

A visit by the mid-wife gave them a glimmer of hope; she heard some people who could provide the surgery Lucael needed for free, were coming on a hospital ship to Madagascar. She finally found a patient screening location within travelling distance of their remote village in the rugged north of Madagascar.
By this stage Lucael’s care had passed to his tiny 78-year-old GreatGrandMother, who loves him will all her heart.

At 10 months and weighing just 4 kg (8.5 lbs), Lucael was flown with his GreatGrandMother to the  coast. Together they entered the infant feeding programme that saved his life.

In 3 months Lucael had reached 6.5 kg (14.3 lbs) – enough weight to undergo surgery. As they were admitted to the Mercy Ships ward GreatGrandMother told me, “I feel so positive about it. My heart is beating fast! First they said they could only do his lip, but yesterday they told me that can fix his palate too!”

Lucale and GGGrandMa just before surgery. Pic Justine Forrest
Lucale and GGrandMa just before surgery. Pic Justine Forrest

So right now, Lucael is 3 decks below me, receiving the best care that money can’t buy.

Did I mention that GreatGrandMother’s Mum lives with them in the village too? There is remarkable, multi-generational mothers’ love waiting to receive this sweet baby home; restored, and gifted with a new future.

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